Huntington Awareness Week
Welcome to a Special Week Long Series of the Cross Border Interview Podcast.
May is Huntington disease Awareness Month around the world.
Huntington disease (HD) is a hereditary, neurodegenerative disease with no cure. About one in every 7,000 Canadians has HD and approximately one in every 5,500 is at-risk of developing the disease.
Many more are touched by HD whether as a caregiver, a family member, or a friend.
Huntington disease is often described as having the symptoms of Alzheimer’s, Parkinson’s and ALS – simultaneously.
As the disease progresses, a person with Huntington’s become less able to manage movements, recall events, make decisions and control emotions. The disease leads to incapacitation and, eventually, death.
This week we talk with doctors on the front line of Huntington’s Disease, a genetic counsellor, representatives from the Huntington Society of Canada, a social worker who works with family members across Alberta, the President of the Southern Alberta Chapter of the Huntington’s Society of Canada. We also talk to family members who have lost loved ones to this disease.
If you want to learn more about Huntington disease please visit huntingtonsociety.ca.
While there please feel free to reach out to your local chapter, get involved, but if you can donate. Your donation can help families across Canada.
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